Showing posts with label Alzheimer's. Show all posts
Showing posts with label Alzheimer's. Show all posts

Saturday, 4 January 2014

Internet Series “Ruth and Erica” Focuses on Family Dynamics and Alzheimer’s

Internet Series “Ruth and Erica” Focuses on Family Dynamics and Alzheimer’s

“Ruth & Erica” launched this week on the YouTube Internet channel WIGS, which, according to the press release, is now the most popular channel for scripted drama on YouTube. The show portrays the dynamics of a family facing the challenges that often accompany aging and ill health. read more..


The “Hidden” Costs When We Quit our Jobs to Care for Our Loved Ones

I don’t need a study to tell me that leaving the workforce to become a family caregiver has cost me, financially. All I have to do is look my puny projected Social Security. Over two decades of my adult “productive” years have been spent caring for elders and children while not working at paid employment. read more..


Caregivers Coping with Criticism from the from the Care Receiver

Each care situation was different. I started with an aged neighbor, then moved on to a childless aunt and uncle, my in-laws and eventually my parents. All of them appreciated me. However they each had moments when, because of their own misery, they’d lash out at me in some way. read more..

Wednesday, 5 September 2012

Hospice Care

Palliative and Hospice Care at the End of Life

...For weeks, each time I walked into Dad's room in the nursing home, he'd be rigid in bed, up on one elbow and slamming his fist against his hand. Pow! Pow! Pow! Over and over, he pounded fist against hand. I'd try to get him to relax; to lie back. He couldn't comprehend. Pow! Pow! Pow! He was trying to knock out the pain. read more..

Pecking Order-Caregiving-Decisions-Siblings

Only Children Vs. Sharing Decisions With Siblings – Which is Easier?

In the world of caregiving, sibling issues abound. Any problems that were around when you were growing up will likely turn up again, as your parents age. The pecking order rarely changes. The "girl" work and the "boy" work rarely changes. There are exceptions, of course. read more..

Solanezumab-Alzheimer

Solanezumab Fails Phase 3 Alzheimer’s Trials: Retains Faint Glimmer of Hope

...Now, Eli Lilly has also announced that their contribution to the Alzheimer’s battle, solanezumab, did not meet the primary endpoints, both cognitive and functional, in either of the two Phase 3, double-blind, placebo-controlled studies on the drug. read more..

Thursday, 9 August 2012

Caregiver

Caregiving: What Would You Do Differently if You Were to Start Over?

As a seasoned caregiver of multiple elders, I can choose to torture myself with my perceived failures at being a perfect caregiver, or I can choose to forgive myself for being imperfect, and recognize that I did the best I could at the time. You have the same choice. read more..

Don't feel guilty if you want a second opinion

Don't feel guilty if you want a second opinion

...Whatever the case, we do have the right to question a doctor's advice or diagnosis, ask for an explanation, and if we aren't satisfied, look for a second opinion. But the issue becomes more complicated when we question a life-long family doctor that our elders trust. read more..

Wednesday, 8 August 2012

Medication Reactions-Friends And Family-Dementia Symptoms

When the Caregiver Shows Symptoms of Dementia

...If you find yourself exhibiting disturbing symptoms that you notice yourself, or friends and family gently bring up to you, don't immediately decide that you, too, have dementia. Other issues that can make you feel as though you are having dementia symptoms are medication reactions or interactions, infections and lack of sleep. read more..

Dementia-Elder

When Your Loved One Says 'I Want to Go Home'

"I want to go home." Nearly any person caring for an elder with dementia has heard this heartbreaking plea, even if the elder is home. It's fairly well accepted by dementia experts that the "home" most elders want to return to is their childhood home, because in later stages of Alzheimer's that is where, in their minds, "home" is. read more..

Friday, 20 July 2012

Medication Reactions-Friends And Family-Dementia Symptoms

When the caregiver develops dementia

If you find yourself exhibiting disturbing symptoms that you notice yourself, or friends and family gently bring up to you, don't immediately decide that you, too, have dementia. Other issues that can make you feel as though you are having dementia symptoms are medication reactions or interactions, infections and lack of sleep. read more..

Tag Sale-Donation

$270 raised for Alzheimer's Association

The final tally of how much I raised with my tag sale (and related donations) is $270.  That includes a $50 check a guy brought, and a few other cash-in-the-jar donations.  I was hoping for twice that.  But it's better than nothing.  I ended up NOT taking the money I spent on the ad back, because the total was so low, so you can throw in my $30 worth of ads as part of my donation!
"Had a Dad" Alzheimer's Blog http://alzheimersdad.blogspot.com(c) Gevera Bert Piedmont })i({Thank you for visiting! read more..

Saturday, 14 July 2012

Tea Shop-Mother

Looking for Meaning Behind the Words

She told us that she used to want to run her head into a brick wall when her mother started repeating the same story over and over.
By Tom and Karen Brenner
Alzheimer's Reading Room
c. 1785There is wonderful little tea shop that opened near us, and I have been visiting it with friends regularly.
A month or so ago, I met an old acquaintance there; she wanted to learn more about the work that Tom and I do using the Montessori Method to help people living with Alzheimer’s.
Her mother was recently diagnosed with Alzheimer’s and she wanted to get some tips on how to better help her mom.
As I was paying the owner of the tea shop that day, she looked up at me with tears in her eyes and told me that she had overheard some of our conversation about Alzheimer’s. Her mother, too, was living with Alzheimer’s and the entire family was in great distress and feeling at a loss about how to help her mom. We talked for a few minutes, and I was only able to say a few things to the tea shop owner. I emphasized to her that she should be in the moment with her mom, and learn to go with her mom’s thought processes as they were at that moment.
I also encouraged her to look for the meaning behind the words that her mother might say, especially when her mother repeated the same thought or the same story over and over. I told her that sometimes people living with Alzheimer’s say the same things over and over because they can’t find the words they want to express themselves, but they need very much to share some emotion, or some memory. I told the tea shop owner to listen carefully to what her mom said and validate the emotions or the feelings behind the words.
A couple of weeks later, Tom and I found ourselves with a few minutes to spare before an appointment, so I suggested that we have tea in the new tea shop. Tom had never been there before, and I thought he would like it.
The tea shop owner came over to talk to us about her mother and she then told us that the simple ideas that I had shared with her on my earlier visit had changed her life!
She told us that she used to want to run her head into a brick wall when her mother started repeating the same story over and over, but now she listens carefully, trying to find the meaning behind the repetitive words. She told us that recently her mother was repeating a story about her childhood. The tea shop owner told her mom that she understood that her mother must have had a wonderful childhood, and that she must have been very happy then. The owner told us that her mother got a huge smile on her face, and was so pleased that her daughter understood her.
It is a wonderful thing to go into a tea shop to enjoy a cup of tea and a scone and to come out of the shop knowing that you have changed someone’s life for the better.
By the way, the tea and scones are wonderful, and the owner is thinking of holding teas for caregivers as a way to help other people who are caring for loved ones with Alzheimer’s.
Tom and Karen Brenner are Montessori Gerontologists, researchers, consultants, trainers and writers dedicated to working for culture change in the field of aging. Tom is a gerontologist and has specialized in creating and researching dementia specific training programs. Karen Brenner is a Montessori educator and has specialized in working with children who are deaf or communication disordered. They have been published in magazines and journals both in the US and internationally. Learn more about Tom and Karen at Brenner Pathways.
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More About the Alzheimer's Reading Room

  • How do Alzheimer's Caregivers Think and Feel?
  • Advice and Insight -- Alzheimer's Reading Room
  • The Alzheimer's Hamster Within YOU
  • Dealing with Difficult Behavior Caused by Dementia and Alzheimer's
  • Communicating in Alzheim read more..

Monday, 9 July 2012

Another award...

Another award...

Best Alzheimer's Blogs forensicscience.net
Just won another award for this blog. Except that they think I'm a guy for some reason.
Had a Dad: The impetus of this blog was simple: to provide a space for a son whose father was struggling with Alzheimer's. His father has recently passed on, yet he continues to vent here.
Source: Top 50 Alzheimer's Blogs
update 06-21-2011: they have corrected the description to "daughter" with the appropriate pronouns.  Still unsure why they decided I'm a guy!  "Had a Dad" Alzheimer's Blog http://alzheimersdad.blogspot.com(c) Gevera Bert Piedmont })i({Thank you for visiting! read more..

Thursday, 5 July 2012

Framingham Offspring Study-Vitamin B12 Deficiency-Increase Memory-Shanghai, China

Tai Chi shown to boost brain size, increase memory in Chinese seniors

Could non-aerobic exercise help prevent Alzheimer’s and other dementia? Possibly. A recent article in The Atlantic reported on a study involving a group of seniors residing in Shanghai, China and the practice of the ancient art of tai chi as a way to prevent Alzheimer’s. read more..


Alzheimer's and Vitamin B12 Deficiency

The Framingham Offspring Study found that Vitamin B12 Deficiency is a big problem. How bad? As many as forty percent of the population might be at risk of a vitamin B12 deficiency.By Bob...
The Alzheimer's Reading Room is the number one source of life news and information for the entire Alzheimers and Dementia community. read more..


Homeward Bound

Even though there are many, many difficulties, having Alzheimer’s does not mean you are less than you were; having dementia does not mean you are dumb...By Tom and Karen...
The Alzheimer's Reading Room is the number one source of life news and information for the entire Alzheimers and Dementia community. read more..

Wednesday, 27 June 2012

The Latest Headlines-Grandparents-Bone Density-Alzheimer

Coping with criticism from your loved one

Caregivers frequently turn their lives inside out in order to care for their loved ones in decline. I know, because I've done it. The number of elders who depended on my help increased throughout the years, to a total of seven, though the most I cared for at one time was five. I also had two children and work part time writing as a freelancer. read more..


Reminiscing powerful “drug” for people with dementia

I love stories. When I was a teenager, I’d encourage grandparents to relate stories of their young years struggling to survive on the wind-swept prairie. When I grew older, I was fascinated by the stories my parents and in-laws told of their early years of growing up during the Great Depression. read more..


Headlines in Alzheimer’s: The Downside of Hospital Stays; Proteins Linked to Alzheimer’s; Loss of Bone Density Linked to Alzheimer’s

Every week we scour the news for the latest headlines in Alzheimer’s stories, care, treatment and prevention. Here are this week’s biggest stories for the week of June 18, 2012-... read more..

Sunday, 17 June 2012

President Obama-Alzheimer's-Dementia

non pharma treatments for Alzheimer's/Dementia

There is a lovely letter here, to President Obama, about non-pharmaceutical treatments for Alzheimer's and dementia.
It reads, in part, "Drugs can't give people with dementia a life worth living. Non-pharmacological interventions can!" and includes a link to a petition to sign.
Hey, I think everything and everything possible should be thrown at Alzheimer's, including voodoo and the kitchen sink.  Sacrifice a chicken, then fry it up and eat it--it was gonna die anyway, right?   "Had a Dad" Alzheimer's Blog http://alzheimersdad.blogspot.com(c) Gevera Bert Piedmont })i({Thank you for visiting! read more..

Friday, 15 June 2012

Uc Davis Researchers-Alzheimer's Disease-The Disease

UC Davis Researchers Create Molecule that Blocks Alzheimer's

As a result, the molecules have great potential as a therapeutic agent to prevent or delay injury in individuals in the earliest stages of Alzheimer's disease.
Alzheimer's Reading Room
John VossUC Davis researchers have found novel compounds that disrupt the formation of amyloid, the clumps of protein in the brains of people with Alzheimer's disease believed to be important in causing the disease's characteristic mental decline.
The so-called "spin-labeled fluorene compounds" are an important new target for researchers and physicians focused on diagnosing, treating and studying the disease.
The study, published today in the online journal PLoS ONE, is entitled "The influence of spin-labeled fluorene compounds on the assembly and toxicity of the Aß peptide."
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UC DAVIS RESEARCHERS CREATE MOLECULE THAT BLOCKS PATHWAY LEADING TO ALZHEIMER'S DISEASE
"We have found these small molecules to have significant beneficial effects on cultured neurons, from protecting against toxic compounds that form in neurons to reducing inflammatory factors," said John C. Voss, professor of biochemistry and molecular medicine at the UC Davis School of Medicine and the principal investigator of the study. "As a result, they have great potential as a therapeutic agent to prevent or delay injury in individuals in the earliest stages of Alzheimer's disease, before significant damage to the brain occurs."Amyloid is an accumulation of proteins and peptides that are otherwise found naturally in the body. One component of amyloid - the amyloid beta (Aß) peptide - is believed to be primarily responsible for destroying neurons in the brain. Fluorene compounds, which are small three-ringed molecules, originally were developed as imaging agents to detect amyloid with PET imaging. In addition to being excellent for detecting amyloid, fluorenes bind and destabilize Aß peptide and thereby reduce amyloid formation, according to previous findings in mice by Lee-Way Jin, another study author and associate professor in the UC Davis MIND Institute and Department of Medical Pathology and Laboratory Medicine.
The current research studied the effects of fluorene compounds by attaching a special molecule to make their activity evident using electron paramagnetic resonance (EPR) spectroscopy. This technology allows researchers to observe very specific activities of molecules of interest because biological tissues do not emit signals detectable by EPR. Since Voss was interested in the activity of fluorenes, he added a nitroxide "spin label," a chemical species with a unique signal that can be measured by EPR.
The group found that spin-labeled compounds disrupted Aß peptide formation even more effectively than did non-labeled fluorenes. In addition, the antioxidant properties of the nitroxide, which scavenge reactive oxygen species known to damage neurons and increase inflammation, significantly contributed to the protective effects on neurons.
"The spin-labeled fluorenes demonstrated a number of extremely important qualities: They are excellent for detecting amyloid in imaging studies, they disrupt Aß formation, and they reduce inflammation," said Voss. "This makes them potentially useful in the areas of research, diagnostics and treatment of Alzheimer's disease."
Alzheimer's disease is the most common form of dementia and affects some 5 million Americans. Current medications used to fight the disease usually have only small and temporary benefits, and commonly have many side effects.
A major obstacle in developing Alzheimer's disease therapy is that most molecules will not cross the blood-brain barrier, so that potential treatments given orally or injected into the bloodstream cannot enter the brain where they are needed. Fluorene compounds are small molecules that have been shown to penetrate the brain well.
"We have br read more..

Thursday, 14 June 2012

Alzheimer

Exercising with Alzheimer’s

A very important part of being a good caregiver for someone who has Alzheimer’s is taking care of you – that means exercising. The benefits of exercise are well documented... read more..

Wednesday, 6 June 2012

Father's Day-Alzheimer's-Flowers

The flowers are few and far between

7 years ago today, which in 2004 was the day after Father's Day, my dad got diagnosed with Alzheimer's. The aliens were stealing his brain, and I made my first post on this blog.
What a long strange trip it's been, and it will never be over, until they find a cure (or cures) or at least a way to halt it until death comes from another source.
My heart goes out to everyone whose families are still traveling this horrible bumpy road. The flowers are few and far between, but they are there, little tiny bits of brightness and laughter and love.
I hope this blog has been, and continues to be, a flower for those walking the road of dementia.
Happy summer solstice. May the sun illuminate your flowers.
(image source)"Had a Dad" Alzheimer's Blog http://alzheimersdad.blogspot.com(c) Gevera Bert Piedmont })i({Thank you for visiting! read more..

Tuesday, 5 June 2012

Alzheimer's-Brain

I Would Rather Be Lucky Than Smart, Dotty Gets a New Doctor

Then I say, can you give her a shot of penicillin...
The Alzheimer's Reading Room is the number one source of life news for the entire Alzheimer's community. Our goal is to Educate, sometimes Entertain, and Empower Alzheimers caregivers and their families worldwide. read more..


Alzheimer's and Learning How to Trust

“I know God will not give me anything I can't...
The Alzheimer's Reading Room is the number one source of life news for the entire Alzheimer's community. Our goal is to Educate, sometimes Entertain, and Empower Alzheimers caregivers and their families worldwide. read more..


Alzheimer's Disrupts Brain Networks

Precise measurement of changes in brain networks...
The Alzheimer's Reading Room is the number one source of life news for the entire Alzheimer's community. Our goal is to Educate, sometimes Entertain, and Empower Alzheimers caregivers and their families worldwide. read more..

Guilt

Drop the caregiver guilt and find some peace

Guilt has a purpose in life. If we are mean, we should feel guilty. If we owe someone an apology, we should be big enough to do so. But guilt is a complicated emotion. We take on the expectations of our culture, our religion, our family. And then we take on the expectations of our toughest critic – ourselves read more..